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Hypermobility and Ehlers–Danlos syndromes

Syndroma Ehlers–Danlos (hypermobilitas articulorum) · Hypermobilita a Ehlersův–Danlosův syndrom

What it is

Faulty collagen makes joints too loose and skin stretchy; the hypermobile type is common and often missed for years.

Symptoms & signs

  • Joints that bend too far and dislocate
  • widespread pain and fatigue
  • stretchy, fragile skin and easy bruising
  • dizziness on standing (POTS)
  • gut problems

🚩 Get help if…

  • call 112 / 911 now Sudden severe pain in chest, belly or head (artery tear in vascular type)
  • call 112 / 911 now Coughing blood or sudden breathlessness
  • see a doctor soon Fainting or racing heart on standing
  • see a doctor soon Joint that dislocates and won't go back

Where it strikes

Medical treatment

  • Beighton score, and genetic tests for the rare types
  • physiotherapy for joint stability
  • pain management without long-term opioids
  • treat POTS and gut symptoms
  • vascular surveillance in vascular EDS (celiprolol)

Natural & lifestyle

  • Low-impact strengthening (pilates, swimming)
  • pacing
  • braces and splints during flare-ups

Emerging & experimental

  • Research into hypermobile EDS genes
  • collagen-targeted therapies

Alternative, off-label & anecdotal

Approaches used outside the guidelines, with what their supporters report and what testing has found so far.

  • Vitamin C — needed to build collagen; untested as treatment outside scurvy anecdotal / traditional
  • Collagen supplements — popular; untested in EDS anecdotal / traditional
  • Prolotherapy — case reports; risky in vascular EDS anecdotal / traditional

ICD codes