Idiopathic intracranial hypertension
Hypertensio intracranialis idiopathica (pseudotumor cerebri) · Idiopatická intrakraniální hypertenze
What it is
Raised pressure of the fluid around the brain with no tumour or other cause, mostly in women of childbearing age with obesity; swollen optic discs can permanently damage sight.
Symptoms & signs
- Daily headache, worse lying down
- whooshing, pulsing sound in the ears
- brief blackouts of vision
- double vision
- loss of visual field
🚩 Get help if…
- call 112 / 911 now Sudden loss of sight or severe headache with vomiting
- see a doctor soon Vision greying out for seconds, or blurred or double vision
- see a doctor soon Headache worse lying down, with a pulsing noise in the ears
- see a doctor soon Headache in pregnancy or getting worse despite treatment
Where it strikes
Medical treatment
- MRI with venography; lumbar puncture pressure
- Weight loss — the only treatment that removes the cause; bariatric surgery beat a community programme (IIH:WT) trials support
- Acetazolamide — IIHTT: modest visual gain with diet in mild vision loss; tingling, altered taste mixed evidence
- topiramate
- optic nerve sheath fenestration or CSF shunt when sight is threatened
- venous sinus stenting
Natural & lifestyle
- Structured weight-loss programme
- avoid tetracyclines and excess vitamin A
- headache diary
Emerging & experimental
- GLP-1 agonists (exenatide lowered pressure in a small trial)
- 11β-HSD1 inhibitors
Alternative, off-label & anecdotal
Approaches used outside the guidelines, with what their supporters report and what testing has found so far.
- Low-salt diet — traditional advice; untested anecdotal / traditional
- Acupuncture for headache — not studied in this condition anecdotal / traditional
ICD codes
- ICD-10 G93.2
- ICD-11 8D60.Y Other specified increased intracranial pressure